Monday, May 3, 2010


Louisville, KY
Diagnosed with Fibromyalgia at age 14.  Also suffers from Epstein-Barr and Chronic Fatigue Syndrome.
How has your condition affected you?  My condition has played a huge role in my life through the years. My lack of energy and increased pain has led me to isolate some and not participate in activities that I enjoy. In school, my pain made sleep and participation in sports challenging. As an adult I find completion of the basic of tasks (like laundry) almost impossible at times. I have missed some work, canceled on friends and have become a needy wife during flare-ups. Not to mention the emotions attached - mostly depression. Some days I feel like an observer of my own life - feeling so detached from all around me (due to pain, brain fog, fatigue, etc.) However, now I am learning to be more mindful of my body and to pay more attention to how I am feeling in a positive way - using my body as a barometer of sorts to see what positive behaviors need to be implemented.

What would you like for other people to know about Fibromyalgia?  I want others to know that it is a REAL condition and that just because you can't visibly see problems with the body doesn't mean that everything inside is working spot-on! 

What would you like to tell someone who was recently diagnosed with Fibromyalgia?  Learn from your body - take this opportunity to truly connect to your physical and emotional self. Be an active participant in your life - learn what's important to do (like relaxation exercises, stretching, sleep, vitamins, being w/ friends etc.) and what you can live without - Don't watch your life pass you by!

Thank you so much Heather! xo


Anonymous said...

this is a gorgeous portrait; she looks like someone you'd really want to get to know.


elisabeth said...

Hooray! I'm so glad that the project is continuing- keep it up!

Jodi said...

thank you elizabeth & elisabeth!

pj taylor said...

oh, I can so relate to heather's words, having recently been diagnosed with Fibro in addition to my RA. especially the pain, the brain fog, the neediness and feeling like an observer, yep, I so get it.

thank you, Jodi, for helping me to not feel so alone.

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