tag:blogger.com,1999:blog-54789551672310733212024-02-20T05:52:17.440-05:00Jodi McKee PhotographyAutoimmune Portrait ProjectJodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.comBlogger27125tag:blogger.com,1999:blog-5478955167231073321.post-36541367677284228702010-11-24T09:40:00.001-05:002010-11-24T09:41:02.181-05:00new website!<div class="separator" style="clear: both; text-align: center;"><a href="http://www.jodimckee.com/portrait-project/"><img border="0" height="480" ox="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgq22ovCXPhJ31n8HdPl8fry0WEnCo8XvdwGrM3s7fTAYul3cz2fX1J6AnXa4IwWaOahQWxmzZX5F9iZ2VyQJhwHtbGv1_gDHbGRrO4nG8a1PW4Jf98qk6FbC-94HGgBfKgCzXD4FqjdQs/s640/screenshot.jpg" width="640" /></a></div><br />
i have a new website! <br />
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<a href="http://www.jodimckee.com/">http://www.jodimckee.com/</a> is up and running. you can find the <a href="http://www.jodimckee.com/portrait-project/">portrait project</a> here. please update your <a href="http://www.jodimckee.com/portrait-project/rss.xml">RSS feeds</a>!Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com4tag:blogger.com,1999:blog-5478955167231073321.post-50767702245878658942010-11-16T09:13:00.000-05:002010-11-16T09:13:56.341-05:00Katie<span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"></span><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj39YXqvCZ3SFnrMy94xQxy31JVBHmZuwUJC03bT6XoQbfA56Oo1reL-mCsvBF3V-5eOVV-gaAfQY_bs0vzMV0VphTGYqxLUbO5q-cxegQ73JRotOpupjFGqGlmWzUKRNDHObCWKH_UoHU/s1600/katie+clark+edit+small.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="394" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj39YXqvCZ3SFnrMy94xQxy31JVBHmZuwUJC03bT6XoQbfA56Oo1reL-mCsvBF3V-5eOVV-gaAfQY_bs0vzMV0VphTGYqxLUbO5q-cxegQ73JRotOpupjFGqGlmWzUKRNDHObCWKH_UoHU/s640/katie+clark+edit+small.jpg" width="640" /></a></div><div style="border-collapse: separate; font-family: 'Times New Roman'; font-size: medium; margin: 0px;"><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"><br />
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</span></div><div style="border-collapse: separate; font-family: 'Times New Roman'; font-size: medium; margin: 0px;"><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;">Name: <a href="http://chronicstyle.blogspot.com/">Katie</a></span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"><br />
</span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;">Location: San Francisco, CA</span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"><br />
</span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;">Age 31</span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"><br />
</span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;">Diagnosed with <a href="http://www.mayoclinic.com/health/crohns-disease/DS00104">Crohn’s Disease</a> at age 24 (after nearly 2 years of struggling)</span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"><br />
</span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;">Diagnosed with <a href="http://www.mayoclinic.com/health/wegeners-granulomatosis/DS00833">Wegener’s Disease</a> at age 29</span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"><br />
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<span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"><b>How have your conditions impacted you? </b></span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"> I’ve always maintained this life rule that you never know what anyone is going through — even if you know them extremely well. Becoming ill made me realize just how true this was. I went from being a scholarship athlete to being too weak and ill to get out of bed some mornings. With silent illnesses like Crohn’s and Wegener’s, no one realizes just how sick you truly are until you end up in the hospital. To boot, with the frequent weight loss both diseases enable, I’ve had people tell me “You look amazing!” when I was feeling awful. That’s just strange (and kind of hilarious) to me.</span><br />
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</span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;">My conditions have also taught me the value of being hyper-aware of how I treat my body — and subsequently have made me very resentful of people who don’t treat theirs with respect (unfair, I know, but true nevertheless). I was vehemently anti-smoking before open lung surgery, but after — my feelings about the absurdity of smoking cigarettes are...ineffable. No one wants tubes in their lungs — no one. I can’t say that enough. I don’t want to dictate anyone’s life choices, but I also don’t want anyone to enable unnecessary damage and pain to themselves -- especially those I know and love.</span><br />
<span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"></span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"><br />
<b>What would you like for other people to know about your conditions?</b><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"> You can and will be an extraordinary person even with these kinds of afflictions if you truly want to be. Everyone is going through something, even if you aren’t aware of it -- mine just happens to be bad health.</span></span><br />
<span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"><br />
</span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;">Also, share the knowledge you gain through your experience! You can help those around you who may be going through something similar in ways you can’t imagine. I feel very lucky to be at ease with a dialogue about Crohn’s and Wegener’s — it helps me to navigate toward a healthier life and possibly a cure for both some day (fingers crossed).</span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"><br />
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</span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"><b>What would you like to tell someone who is recently diagnosed with your condition(s)? </b>Everyone will try and give you their version of how to “cure” your ailment — but the honest to goodness truth is, we are all different. People will constantly say “You can eat that?” or “You can do that?” -- you have to know that they likely only have your best interest at heart (no matter how annoying it gets!). I get deathly ill if I eat peanuts, but I have lots of friends with Crohn’s disease who can eat peanuts until the cows come home.</span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"><br />
</span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"><br />
</span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;">Tell those you love when you’re not feeling well -- it enables them to give you the support you need. (I still struggle with this though — because I don’t want people to label me as “sick.”)</span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"><br />
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</span></span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"><b>Katie's favorite quotes:</b></span><br />
<span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;">“Our lives begin to end the day we remain silent about things that matter.” —Martin Luther King Jr.</span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"><br />
</span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;">“Be kind whenever possible. It is always possible.” —Dalai Lama</span><br />
<span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"><br />
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<span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"></span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"><b>Thank you so much Katie!</b></span><br />
<span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"><b>Also, please be sure to visit Katie's blog, <a href="http://chronicstyle.blogspot.com/">Chronic Style</a>.</b></span><span class="Apple-style-span" style="border-collapse: collapse; font-family: arial,sans-serif; font-size: 13px;"><br />
</span>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com7tag:blogger.com,1999:blog-5478955167231073321.post-62789705202310443082010-10-21T09:49:00.002-04:002010-10-21T10:08:18.595-04:00Joseph<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi5Y_RMC-4ODCrdw4_oeMw09xXRU475MV1dSdWlNGLmZBqbGrkG9oAr0-cFDIMPlMeRGl1WjvVGOVVYpkrqA7-_gSr_o6H2bRaRAUaKD4yx0Sfuqoyx1-mjV7dBAVxzoFbXLX4LY7OlKQM/s1600/joseph.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi5Y_RMC-4ODCrdw4_oeMw09xXRU475MV1dSdWlNGLmZBqbGrkG9oAr0-cFDIMPlMeRGl1WjvVGOVVYpkrqA7-_gSr_o6H2bRaRAUaKD4yx0Sfuqoyx1-mjV7dBAVxzoFbXLX4LY7OlKQM/s640/joseph.jpg" width="426" /></a></div><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Name: <a href="http://www.josephencinia.com/Home.html">Joseph</a></span><br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Location: New York, NY/Mumbai, India by way of San Diego, CA and Dallas, TX<br />
Age: 25<br />
Diagnosed with <a href="http://www.mayoclinic.com/health/juvenile-rheumatoid-arthritis/DS00018">Juvenile Rheumatoid Arthritis</a> at age 8 </span><br />
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<b><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">How has your condition impacted you? </span></b><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">RA and Heart Disease have impacted my life tremendously. At a very young age, I had to learn to deal and live with my conditions. This made my childhood very difficult. I was unable to grow up the normal way healthy kids do. I would dream of being as strong as my athletic twin brother and living a disease-free life. I found yoga and decided to follow my dreams of a disease free lifestyle. Since then, my life has changed and any pain I feel in my body only fuels my desire to transcend the limitations within myself - mentally, physically, and emotionally.</span><br />
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<b><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">What would you like for other people to know about your condition?</span></b><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> I was diagnosed with JRA when I was 8. I had many complications from the physical stress and from taking all the medications. Between the age of 11 and 13, I had major knee surgery, suffered from migraine headaches and had stomach ulcers. At the age of 13, I had a heart attack. I found yoga when I was 19 and have been been in remission for the past 6 years of my life. </span><br />
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<b><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">What would you like to tell someone who was recently diagnosed with your condition? </span></b><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Not to settle for the cards you have been dealt. If you do not learn to have joy in life and accept your condition(s), then you might as well live in a box. We are given our condition to learn from it and to become stronger and wiser about the way we live our lives. All conditions can be controlled, if not reversed, through our own minds. It's our willingness to change and not live under the shadow of our disease that gives us joy in life. </span><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Here is the first quote that popped into my head after I wrote this. It's from my teacher, <a href="http://en.wikipedia.org/wiki/Bikram_Choudhury">Bikram Choudhury</a> - "Having doesn't mean anything if you don't know how to use it." </span><br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">I like this quote because it reminds that my conditions were a gift. A gift which taught me that anything in great life is worth suffering for. :)</span><br />
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<b><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Thank you so much Joseph! Your smile and positive attitude are contagious!!</span></b><br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Be sure to check out more of Joseph's amazing success with Bikram Yoga <a href="http://www.josephencinia.com/site/page/pg3068.html">here</a>. </span>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com6tag:blogger.com,1999:blog-5478955167231073321.post-28671122967157395722010-10-13T11:07:00.000-04:002010-10-13T11:07:22.571-04:00Jennifer<span style="font-size: small;"></span><div class="separator" style="clear: both; text-align: center;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCNbuaEfUV_xIbtOYct6nFz9ZqcXHMbymEhdL_0k2jfdu5vGy-d4zd7yW1raFL9ke4DJdwVfZwqkhioRE_iFIfajazQftgBi7x4JWtLkWS3Q98WaQz7ztkOKEHV0P88Y45vOyfB4Iy4l0/s1600/jennifer+UES+edit.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCNbuaEfUV_xIbtOYct6nFz9ZqcXHMbymEhdL_0k2jfdu5vGy-d4zd7yW1raFL9ke4DJdwVfZwqkhioRE_iFIfajazQftgBi7x4JWtLkWS3Q98WaQz7ztkOKEHV0P88Y45vOyfB4Iy4l0/s640/jennifer+UES+edit.jpg" width="414" /></a></span></div><span style="font-size: small;"><br />
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<span class="Apple-style-span" style="border-collapse: collapse; font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif; font-size: small;">Name: <a href="http://www.blipfoto.com/katgirl">Jennifer</a></span><br />
<span class="Apple-style-span" style="border-collapse: collapse; font-size: small;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;">Location: New York</span></span><span class="Apple-style-span" style="border-collapse: collapse; font-size: small;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;"><br />
</span></span><span class="Apple-style-span" style="border-collapse: collapse; font-size: small;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;">Age: 38</span></span><span class="Apple-style-span" style="border-collapse: collapse; font-size: small;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;"><br />
</span></span><span class="Apple-style-span" style="border-collapse: collapse; font-size: small;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;">Diagnosed with <a href="http://www.mayoclinic.com/health/hashimotos-disease/DS00567">Hashimoto's Thyroiditis</a> at age 33, <a href="http://www.mayoclinic.com/health/sjogrens-syndrome/DS00147">Sjogren's Syndrome</a> with a <a href="http://www.smallfiberneuropathy.net/">small fiber peripheral neuropathy</a> at 35, <a href="http://www.mayoclinic.com/health/lupus/DS00115">Systemic Lupus Erythematosus</a> at 38</span></span><br />
<span class="Apple-style-span" style="border-collapse: collapse; font-size: small;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;"> </span></span><br />
<span class="Apple-style-span" style="border-collapse: collapse; font-size: small;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;">*******</span></span><br />
<span class="Apple-style-span" style="border-collapse: collapse; font-size: small;"><b><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;">How have your conditions impacted you? </span></b></span><span class="Apple-style-span" style="border-collapse: collapse; font-size: small;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;">My illness has completely changed the course of my life. Because of arthritis and my peripheral neuropathy, I was unable to continue my job, just 1 year after I had finished a lifetime of training for that career. I started my own business that gave me a flexible schedule to attend doctor appointments and rest as needed. After a year, I went back to work part-time, while keeping my own business running. Juggling the two is difficult, but I am definitely quite happy with my career at this point in my life.</span></span><br />
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The most difficult part of my illness is the effect that it has on my family. My thyroiditis was undiagnosed during my pregnancy with my son and we nearly lost him at 19 weeks of pregnancy. Fortunately, after many months of bed rest, he was fine. But I developed one autoimmune disease after another in the years that followed. My son has never known me to be well. He is a very active boy and I HATE that I cannot keep up with him. My husband is a wonderful single parent when I am out of commission. I am grateful for that, but desperately wish that I could always be there when they need me.</span></span><span class="Apple-style-span" style="color: #500050; font-size: small;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;"><span class="Apple-style-span"><br />
</span></span></span></div><div><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif; font-size: small;"><span class="Apple-style-span"> </span></span></div><div><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif; font-size: small;"><span class="Apple-style-span"><br />
</span></span></div><div><span style="font-size: small;"><b><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;"><span class="Apple-style-span">What would you like for other people to know about your conditions? </span></span></b></span><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif; font-size: small;"><span class="Apple-style-span">When you develop one autoimmune disease, you are more likely to develop another in the future. I feel like the poster child for this statement! I would like people to keep this in mind if they are ever diagnosed with an autoimmune disease. Not all doctors are astute enough to make the connection if you become ill in the future that this may be another autoimmune disease. </span></span></div><div class="im" style="color: #500050;"><div><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif; font-size: small;"><span class="Apple-style-span"><br />
</span></span><span style="font-size: small;"><b><span class="Apple-style-span" style="color: black;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;"><span class="Apple-style-span">What would you tell someone who is newly diagnosed with your condition(s)? </span></span></span></b></span><span class="Apple-style-span" style="color: black; font-size: small;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;"><span class="Apple-style-span">You are your best advocate. If your physician is not answering your questions or spending enough time to listen to you, start looking for someone else and </span></span><i><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;"><span class="Apple-style-span">do not feel guilty about it</span></span></i><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;"><span class="Apple-style-span">. My biggest mistakes in managing my health have been to trust doctors who were really not dedicated to my care. These mistakes were serious ones that negatively affected my health for several years and almost caused us to lose our son.</span></span></span></div></div><div><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif; font-size: small;"><span class="Apple-style-span"><br />
It is also really important for you to figure out what your insurance will and will not cover. I have had 4 different health insurance plans since my diagnosis. Our previous HMO and PPO plans seemed fine until they did not cover necessary procedures and medications. We spent thousands more than the maximum out-of-pocket amounts because of the expenditures they did not cover. Ultimately, a high deductible plan that covers everything once the out-of-pocket amount has been met has been the best value for our family. I know exactly how much to budget for my health insurance each year, and that has been a huge relief. Being sick and paying for health insurance is hard enough. Fighting for coverage is a battle patients should not have to wage.</span></span></div><div><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif; font-size: small;"><span class="Apple-style-span"><br />
</span></span></div><div><span style="font-size: small;"><b><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;"><span class="Apple-style-span">Thanks so much <a href="http://www.blipfoto.com/katgirl">Jennifer</a>!</span></span></b></span></div>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com4tag:blogger.com,1999:blog-5478955167231073321.post-8466423984012692962010-10-05T11:45:00.003-04:002010-10-05T13:28:26.073-04:00Ali<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnN9KfAiyeNLZnwr6386gjqCoHKAtj9Je0RGpBNaeeIN3kyPNgvjcQmRpjA5y5sPUp7lz7L_rfJhcjVTvJemhrQV7XndEPX2BrfM181n3fjS6Iy7wPk1b91HCSk0jgbSuDyXk2qXnhMzI/s1600/ali+times+square.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnN9KfAiyeNLZnwr6386gjqCoHKAtj9Je0RGpBNaeeIN3kyPNgvjcQmRpjA5y5sPUp7lz7L_rfJhcjVTvJemhrQV7XndEPX2BrfM181n3fjS6Iy7wPk1b91HCSk0jgbSuDyXk2qXnhMzI/s640/ali+times+square.jpg" width="640" /></a></div><br />
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<span class="Apple-style-span" style="border-collapse: collapse; font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;">Name: Ali</span><br />
<span class="Apple-style-span" style="border-collapse: collapse;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;">Location: New York, NY</span></span><span class="Apple-style-span" style="border-collapse: collapse;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;"><br />
</span></span><span class="Apple-style-span" style="border-collapse: collapse;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;">Age: 26</span></span><span class="Apple-style-span" style="border-collapse: collapse;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;"><br />
</span></span><span class="Apple-style-span" style="border-collapse: collapse;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;">Diagnosed with <a href="http://www.mayoclinic.com/health/ankylosing-spondylitis/DS00483">Ankylosing Spondylitis</a> at age 18</span></span><br />
<span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;">*******</span><br />
<div style="text-align: left;"><span class="Apple-style-span" style="border-collapse: collapse; color: #333333;"><b><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;">How has your condition impacted you? </span></b></span><span class="Apple-style-span" style="border-collapse: collapse; color: #333333;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;">I would like to say not at all, but as time goes by, I'm realizing that that might be a bit more of a lie than I've let myself believe. Being diagnosed at a younger age, and having misdiagnosis after misdiagnosis since I was thirteen, AS became a part of me that I simply dealt with; it was, and continues to be, a part of my everyday life. In a way I'm glad that there was a four year period of trying different medications, having allergic reactions to other medications, and dealing with seemingly endless questions from middle school and early high school friends. In retrospect, this helped me appreciate a concrete diagnosis that much more. It built character, I wrote my college essay on the challenges I faced, and it helped solidify a strong appreciation for the little things in life. Learning to approach any situation by looking for a silver lining, no matter what has occured, has helped put a lot of things into perspective.</span></span></div><div style="text-align: left;"><br />
</div><div class="im" style="border-collapse: collapse; color: #500050; text-align: left;"><div style="color: #333333; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal; margin: 0px; min-height: 14px;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;"><br />
</span></div><div style="color: #333333; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal; margin: 0px;"><b><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;">What would you like for other people to know about your condition? </span></b><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;">It's okay to ask questions, and I'd actually prefer it if you did. Going back to the diagnosis phase, things get a little hazy, but that entire period is so crucial to really understanding AS, that it might take a question or two to show me that you care to know and will try to understand - it's a common misconception that arthritis is only something that your grandparents can get. Please understand that I might look perfectly fine, but I might be incredibly fatigued. Or achy - especially when it's rainy out. However, I also hate to complain, so offering to carry something up the stairs, offering me a couch instead of the floor if I'm staying over your house, or hanging back with me when I walk just a bit slower after leaving the movies, is appreciated more than you know.</span></div></div><div style="border-collapse: collapse; color: #333333; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal; margin: 0px; min-height: 14px; text-align: left;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;"><br />
</span></div><div style="border-collapse: collapse; color: #333333; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal; margin: 0px; text-align: left;"><b><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;">What would you like to tell someone who was recently diagnosed with your condition? </span></b><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;">First and foremost, yay! You're not in the dark anymore, and that's half the battle. Secondly, don't get discouraged. Although it might be hard to not beat yourself up over the ups and downs (it took going through an entire category of medications, endless rounds of physical therapy, multiple casts, different specialists, and finding a drug that wasn't even FDA approved back in 2003, for me to find something that gave me relief and stopped the progression of things), do the best that you can do, and give yourself a break. After you have a chance to process, well - everything - decide how you're going to treat this new aspect to your life. You don't have to suffer alone, and it's okay to ask for help. It also doesn't have to be a constant demon, as you'll get to know your body and yourself in a much deeper way than most people. Take advantage of this, as it will help you appreciate similar qualities in others - although you might not want to share things at first. I'm still coming to terms with openly talking about everything, but I'm also learning that that's okay. You'll come to notice who really sticks around, and who offers to carry that extra heavy bag. Or maybe, someday you'll be able to carry that heavy bag yourself, and these little things are the things that matter. :) </span></div><div style="border-collapse: collapse; color: #333333; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal; margin: 0px;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;"><br />
</span></div><div style="border-collapse: collapse; color: #333333; font-style: normal; font-variant: normal; line-height: normal; margin: 0px;"><span class="Apple-style-span" style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;"><b>Thank you so much Ali!</b></span></div>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com5tag:blogger.com,1999:blog-5478955167231073321.post-36374425405892327722010-09-28T09:10:00.003-04:002010-09-28T09:11:50.849-04:00Lori<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1gCOqG6Vli7pLPjbXwgxVTIgwpOH05iPlKRIMUdU08uxwiiICcEvK2R8e6XalHJXKW1o-eVQUD7xG2RYSknfUM0J19Nnpv3gwjPN7vPre_BxE4h1Hc-Ul5m2-FRsBsgck3dfTVPtAbcg/s1600/lori.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1gCOqG6Vli7pLPjbXwgxVTIgwpOH05iPlKRIMUdU08uxwiiICcEvK2R8e6XalHJXKW1o-eVQUD7xG2RYSknfUM0J19Nnpv3gwjPN7vPre_BxE4h1Hc-Ul5m2-FRsBsgck3dfTVPtAbcg/s640/lori.jpg" width="416" /></a></div><br />
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<span style="font-size: small;">Name: Lori</span></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="font-size: small;">Location: Ronkonkoma, NY</span></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="font-size: small;">Age: 44</span></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="font-size: small;">Diagnosed with <a href="http://www.mayoclinic.com/health/rheumatoid-arthritis/DS00020">Rheumatoid Arthritis</a> in 2001. Also suffers from <a href="http://www.mayoclinic.com/health/fibromyalgia/ds00079">Fibromyalgia</a>.</span></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="font-size: small;">*******</span></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="font-size: small;"><b>How has your condition impacted you? </b> <span class="Apple-style-span" style="border-collapse: separate; color: black; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span class="Apple-style-span" style="border-collapse: collapse; color: #333333;">Professionally, it has taken away the ability to work full-time which has resulted in my giving up a fairly well-paying job for part-time work. <span class="Apple-converted-space"> </span>Because I am limited in energy, focus and physical ability it has led me to spend my time on the things that matter to my heart. Where I once worked in “Corporate America”, I now work at Non-Profit Agencies. Working with my church’s Food Pantry and The Foundation for Sight and Sound has allowed me to use my professional talents for people who need it the most. Also, it’s NOT 9-5, so I can work as my health permits.</span></span></span></div><span style="font-size: small;"><span class="Apple-style-span" style="border-collapse: separate; color: black; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"></span></span><br />
<span style="font-size: small;"><span class="Apple-style-span" style="border-collapse: separate; color: black; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"></span></span><br />
<span style="font-size: small;"><span class="Apple-style-span" style="border-collapse: separate; color: black; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"></span></span><br />
<span style="font-size: small;"><span class="Apple-style-span" style="border-collapse: separate; color: black; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span class="Apple-style-span" style="border-collapse: collapse;"></span></span></span><br />
<div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-size: small;"><span class="Apple-style-span" style="border-collapse: separate; color: black; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span class="Apple-style-span" style="border-collapse: collapse;"><span style="color: #333333;">Personally, it has highlighted how amazing my family is. When I let go of control of how everything gets done and allow my son, daughter or husband to help in their own way, they can be part of the solution. When my son was only 12, he helped give me injections. <span class="Apple-converted-space"> </span>My daughter travels with me and helps me with all the crazy plans I make.<span class="Apple-converted-space"> </span> My husband does dishes and shopping and ANYTHING he can think of. Empowering them makes us all feel better.</span></span></span></span></div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-size: small;"><span class="Apple-style-span" style="border-collapse: separate; color: black; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span class="Apple-style-span" style="border-collapse: collapse;"><span style="color: #333333;">Finally, this condition does not fit my personality. It is painful and I am not one to wallow or “give in” when my body wants to stop. I am still not sure how to deal with it all. It is a continual lesson in acceptance and it has made me look at how hard I am on myself. No one expects as much from me as I do.</span></span></span></span></div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-size: small;"><span class="Apple-style-span" style="border-collapse: separate; color: black; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span class="Apple-style-span" style="border-collapse: collapse;"><span style="color: #333333;">The impact on my life is a moving target but so far, I’m still taking shots!</span></span></span></span></div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-size: small;"><span class="Apple-style-span" style="border-collapse: separate; color: black; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span class="Apple-style-span" style="border-collapse: collapse;"><b><span style="color: #333333;">What would you want people to know about your condition?</span></b><span style="color: #333333;"> Apparently, not much - It has taken me years to talk about what goes on in my body and when it does come out I am overwhelmed with worry about letting people down. <span class="Apple-converted-space"> </span>Having said that - I want other people dealing with RA and/or fibromyalgia to know they can talk to me about what they are going through. Some of the greatest healing can come from sharing.<span class="Apple-converted-space"> </span> </span></span></span></span></div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-size: small;"><span class="Apple-style-span" style="border-collapse: separate; color: black; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span class="Apple-style-span" style="border-collapse: collapse;"><b><span style="color: #333333;">What would you want to tell someone who is newly diagnosed with your condition?<span class="Apple-converted-space"> </span></span></b><span style="color: #333333;">Try and be kind to yourself. There is only so much you can do to feel normal. Keep changing doctors until you find someone who shares your vision for your future health. Whenever I am faced with a new barrier – a new joint inflamed, an existing treatment stops working, a new surgery becomes necessary – I fight with all my strength to get back to “normal”, but if the fight falls short of the mark, I’ve learned that by accepting the situation a new possibility will open up. The thoughts in my stubborn brain will change and answers will present themselves in ways that I could not have been imagined.</span></span></span></span></div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-size: small;"><span class="Apple-style-span" style="border-collapse: separate; color: black; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span class="Apple-style-span" style="border-collapse: collapse;"><span class="Apple-style-span" style="border-collapse: separate; color: black; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span class="Apple-style-span" style="border-collapse: collapse;"><span class="Apple-converted-space"><b>Lori's favorite quote:</b></span></span></span><span class="Apple-style-span" style="border-collapse: separate; color: black; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span class="Apple-style-span" style="border-collapse: collapse;"><b> </b> "Do what you can, with what you have, where you are."</span></span><span style="color: #333333;"> -- </span><span class="Apple-style-span" style="border-collapse: separate; color: black; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span class="Apple-style-span" style="border-collapse: collapse;"><span class="Apple-style-span" style="border-collapse: separate; color: black; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span class="Apple-style-span" style="border-collapse: collapse;">Theodore Roosevelt </span></span></span></span></span></span></span></div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-size: small;"><span class="Apple-style-span" style="border-collapse: separate; color: black; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span class="Apple-style-span" style="border-collapse: collapse;"><span class="Apple-style-span" style="border-collapse: separate; color: black; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span class="Apple-style-span" style="border-collapse: collapse;"><span class="Apple-style-span" style="border-collapse: separate; color: black; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span class="Apple-style-span" style="border-collapse: collapse;"><b>Thank you so much Lori! </b> </span></span></span></span></span></span></span></div></div><span style="font-size: small;"><span class="Apple-style-span" style="border-collapse: separate; color: black; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span class="Apple-style-span" style="border-collapse: collapse;"></span></span></span> <span class="Apple-style-span" style="border-collapse: separate; color: black; font-family: 'Times New Roman'; font-size: medium; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: normal; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span class="Apple-style-span" style="border-collapse: collapse; color: #333333; font-family: arial,sans-serif; font-size: 13px;"></span></span>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com6tag:blogger.com,1999:blog-5478955167231073321.post-4149484140770802912010-09-15T09:00:00.000-04:002010-09-15T09:00:46.088-04:00Betsy<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiYiXKIPEfZDAvxNWazuM7pq2Qodyd39Os0UB8fvwHc_11Nq8vzRwoHHD-8a6i5_cmA7uid8Mf5emks4gZEiRR-mpqiN7JENBzNNS3KEPCXLKueR93ruiujjBT93ur7pxGPNd5-YopbCV0/s1600/betsy+42nd+st.2.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiYiXKIPEfZDAvxNWazuM7pq2Qodyd39Os0UB8fvwHc_11Nq8vzRwoHHD-8a6i5_cmA7uid8Mf5emks4gZEiRR-mpqiN7JENBzNNS3KEPCXLKueR93ruiujjBT93ur7pxGPNd5-YopbCV0/s640/betsy+42nd+st.2.jpg" width="406" /></a></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><br />
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</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Name: Betsy<br />
Location: Rochester, MN<br />
Age: 32<br />
Diagnosed with <a href="http://www.mayoclinic.com/health/ankylosing-spondylitis/DS00483">Ankylosing Spondylitis</a> at age 31</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">*******</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>How has your condition impacted you?</b> It's still hard for me to take in that Spondylitis is something I have, and am going to have to deal with going forward. I was in denial for quite some time. I hoped that I was just misdiagnosed again. It has only been recently that I have come to a point of acceptance and understanding to tell people outside of my intimate circle of friends and family. I am learning who my true friends are and that not every one can handle my new reality. I am learning that I have to create balance in my life and carefully choose how I spend my energy. I am constantly working to reframe my grief for the things I cannot do, but instead look for new ways to find joy. My condition really has impacted how I view and prioritize my life, more than the obvious physical obstacles. Inflammation in my sacrum extends into the lumbosacral plexus which causes shooting pain down my legs along with localized sacral and pelvic pain. I am stiff in the morning and quite fatigued, which is difficult as a mother of 2 young boys.<br />
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<b>What would you like for other people to know about your condition?</b> First, if you have not heard of this disease check out the following website to learn the basics: <a href="http://www.stopas.org/">www.stopas.org</a>. Also, the scientific understanding, research, treatments, and prognosis are constantly evolving with this disease. Although I was initially shocked by my diagnosis, which sent me into a deep depression, I am now grateful for the diagnosis in that at least I don't have to keep wondering what is going on, and of course treatment designed for the disease you have is always better than treatment for something you don't have! I do have hope that advances will slow progression or even bring a cure.<br />
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<b>What would you tell someone who is newly diagnosed with your condition?</b> There is hope. There are many approaches to treating this disease. I think having faith in your physicians and care team is essential. No question should be disregarded and you need to seek the treatment approach that you are comfortable with.</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">I am a mother of 2 young boys and was unable to accept the textbook answers I was getting from the first rheumatologist I saw. I was uncomfortable with a symptoms based approach. So I did my research, looked at clinical trials, read endless scientific journal articles, and found a rheumatologist who had the approach I desired, to treat the disease systemically and try to slow or halt progression. There are endless treatment and lifestyle choices to explore.<br />
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When I shared my diagnosis with my aunt, she sent me a beautiful note. I hope this excerpt helps you as it has aided me in staying grounded on even the most painful days, “I believe that God gives us life with a purpose attached. And that purpose, whatever it may be for each of us, still remains no matter the circumstances. And sometimes difficult circumstances can even bring our purpose into sharper focus.”</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><br />
<b>Thank you so much Betsy!!</b></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">(And thanks to <a href="http://lovingwithchronicillness.blogspot.com/">Maya</a> for introducing us!)</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><br />
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</div>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com9tag:blogger.com,1999:blog-5478955167231073321.post-82299217373704518692010-08-17T11:44:00.000-04:002010-08-17T11:44:54.860-04:00Melissa<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEihYOVyLc4BHJLyJQWDjqorhvepGEGO-f0ZIQqWTkW84VtlgbJctqwagKAgFrf5ZI7BuvJoZsoqilvHW9K7r9WWry0kSI_riAo2Nsk9mKVnabbRCq3uPK1QAxN06zywLl7YXRHeML8GgaQ/s1600/melissa+-+small+edit.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="438" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEihYOVyLc4BHJLyJQWDjqorhvepGEGO-f0ZIQqWTkW84VtlgbJctqwagKAgFrf5ZI7BuvJoZsoqilvHW9K7r9WWry0kSI_riAo2Nsk9mKVnabbRCq3uPK1QAxN06zywLl7YXRHeML8GgaQ/s640/melissa+-+small+edit.jpg" width="640" /></a></div><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Melissa</span><br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">New York City </span><br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Age 21</span><br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Diagnosed with <a href="http://www.mayoclinic.com/health/juvenile-rheumatoid-arthritis/DS00018">Juvenile Rheumatoid Arthritis</a> at age 16</span><br />
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<b><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">How has your condition impacted you?</span></b><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> </span><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">My condition has been a challenge since the day I woke up with stiffness, pain and swelling in my feet. </span><br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> As the days were passing by, I was frequently going to the ER as it was affecting different joints of my body and I had no explanation why I was going through so much pain. I felt tied down, but with pain, and I couldn't do anything . . . just wait. The pain was so intense that there were no words to describe it. My family was very understanding, they never left my side. After 5 months of pain and struggling I was diagnosed with JRA. I felt relieved, but I was in denial. I didn't respond well to the medication after the first year, and it was devastating. At first, nobody understood me and it was frustrating because people don't know that kids get arthritis too. There were days that I couldn't get up from bed and times that I wanted to give up. Endless nights of crying without sleep . . . I asked God why he put me through so much pain. Now I know because I'm strong and I can cope with any situation no matter how difficult it is. It changed my life in positive ways. I became stronger and a more patient person than I was before JRA.</span><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>What would you like for other people to know about JRA?</b> Be considerate and understanding because you have no idea what type of pain we go through. Dealing with this condition is unpredictable; there are ups and downs. When I tell people about my condition they always tell me "Oh, but there's a cure for that," or, "You're too young to have that." JRA is an autoimmune disease; it has no cure and it can happen to anybody. Do research so you can understand the disease. If one day you see me crying because I am in pain, just help me. It will show me how much you care and understand.</span><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>What would you tell someone who is newly diagnosed with RA?</b> Never give up and don't let this condition get the best of you. There will be days that you will feel grief, but always stay positive. At times will you become isolated and depressed. Keep in mind there will be better days and that you will appreciate the good and bad days. What other people take for granted we don't . . . the simple things like walking, dressing yourself, getting up from bed, etc. You will become stronger, patient and appreciate the smallest things. It might sound crazy, but battling with a pain against your own will makes you special and stronger than the pain. Never lose hope and maintain strength at all times; having a family and friends that cares helps a lot.</span><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>Thank you so much Melissa!</b> </span>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com5tag:blogger.com,1999:blog-5478955167231073321.post-49061824469667239282010-07-14T15:48:00.004-04:002010-07-14T16:38:27.581-04:00Michelle<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNJAvEx2m3AXy2H9nxWWOpQY7h09Xu2TfEy8jSHYJkTx3Vj8g-8flZ8LUB-aYYfshY8600X5Aw41mKN_wHaH8tiqyx2zeN_YJw6Z8_REStxEtOL7wLz61k0OTcESOjVMxhTxbPhurLXcQ/s1600/michelle+2.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="440" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNJAvEx2m3AXy2H9nxWWOpQY7h09Xu2TfEy8jSHYJkTx3Vj8g-8flZ8LUB-aYYfshY8600X5Aw41mKN_wHaH8tiqyx2zeN_YJw6Z8_REStxEtOL7wLz61k0OTcESOjVMxhTxbPhurLXcQ/s640/michelle+2.jpg" width="640" /></a></div><br />
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<a href="http://www.michellelovesmike.blogspot.com/"><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Michelle</span></a><br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Mishawaka, IN</span><br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Diagnosed with <a href="http://www.mayoclinic.com/health/juvenile-rheumatoid-arthritis/DS00018">Juvenile Rheumatoid Arthritis</a> at age 15</span><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>How has your condition impacted you?</b> I was 15 to 16 years old when I found out I have Juvenile Rheumatoid Arthritis. At first, I didn't know what to think, how to feel, or what to do. I didn't feel "sick" so it was confusing to me. I went to Riley Children's Hospital in Indianapolis for the pain, stiffness, and swelling I had in my left knee and in my right pointer finger. Slowly, through the years, it started to affect me in different joints. There were so many days I would just sit and cry. There was nothing I could do but cry. I felt very alone. I lost two jobs because of my disease, I lost friends, and I lost my teen years. Sometimes, I still wonder how I got out of bed each day. However, now that I am responding well to medication, I spend most of my time symptom free. It's been a long road to get me here, but I know it's not over. I just thank my family for being here and for a husband who doesn't get it all, but tries so very hard to. I do believe this has made me a stronger person and more compassionate towards others.</span><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>What would you like for other people to know about RA?</b> Just because you don't look sick or act sick every day doesn't mean that you are healthy. I want everyone to know that. Be compassionate towards others because you never know what they are battling.</span><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>What would you want to tell someone who is newly diagnosed with RA?</b> I want them to know that it's you and RA. It's only the two of you. It's best to just accept it. It's hard not to think, "Why me?", but it's best to remember that things could always be much worse. You are the only one who can make yourself feel better. You'll be just fine . . . even on days when it doesn't feel like it. There will be days that you struggle. You will feel helpless at times. You will experience a period of grief. However, there is a world of people out there who understand the pain. It's best to have a great doctor with great nurses. Also, family and friends will pull you through anything. It's best to be patient, say your prayers, and realize that you are not alone!</span><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>Extra thanks to Michelle for meeting me on a very cold day in December for this photo shoot and then patiently waiting for the July/August issue of <i>Arthritis Today</i> magazine to come out before seeing her portrait on this site. Thank you Michelle!</b></span>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com4tag:blogger.com,1999:blog-5478955167231073321.post-79516639159855742092010-07-07T13:11:00.002-04:002010-07-14T15:55:18.275-04:00Katherine<div class="separator" style="clear: both; text-align: left;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMR7u8Qd2HpmaWU4aHz_t_mFxO_P21X91ND5tT4zHIlfufEgUxegZ66FcmrG8OX0Z-nABZiMgvNtgc3DxqLNjrM84TAC8bVUabz183yu3LdX6fxA4zJRoiQS-O44aRPQEuXQCAnzyLuQw/s1600-h/katherine2.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="440" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMR7u8Qd2HpmaWU4aHz_t_mFxO_P21X91ND5tT4zHIlfufEgUxegZ66FcmrG8OX0Z-nABZiMgvNtgc3DxqLNjrM84TAC8bVUabz183yu3LdX6fxA4zJRoiQS-O44aRPQEuXQCAnzyLuQw/s640/katherine2.jpg" width="640" /></a></div><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; font-size: small;">Katherine</span><br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; font-size: small;">New York City</span><br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; font-size: small;">Diagnosed with <a href="http://www.mayoclinic.com/health/rheumatoid-arthritis/DS00020">Rheumatoid Arthritis</a> at age 24</span><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">*******</span><br />
<b><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">How has your condition impacted you?</span></b><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> Honestly, I feel that RA hasn't impacted me as much as you may think. I am still able to do the majority of the things I love. When I was first diagnosed, learning that I couldn't go out drinking with my friends was quite disturbing. At 24, that was what we did on weekends! I've since adjusted my social life and am very happy. </span><br />
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<b><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">What would you like other people to know about Rheumatoid Arthritis?</span></b><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> Most people associate Rheumatoid Arthritis (RA) with osteoarthritis, stating that, "Oh, my Grandma has that!" when you mention you have RA. I'd like for there to be greater awareness of who is affected by RA and how it differs from other forms of arthritis.</span><br />
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<b><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">What would you want to tell someone who is recently diagnosed with RA?</span></b> <span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">I'd like to tell them not to read the information they find online. But, I know that they will. So, if you have to look online for info, also look for unique voices and bloggers talking about life with RA. I've found a great group of young women in NYC all living with RA who have not let the disease change their lives. Also, remember that the medical treatments have changed greatly in recent years, so you won't necessarily end up as an old lady with crippled fingers!</span><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>A special thanks to Katherine for enduring the freezing cold weather last winter for this photo shoot and for patiently waiting for the July/August issue of <i>Arthritis Today </i>magazine to come out before seeing her portrait on this site. Thanks Kat!!</b> </span>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com6tag:blogger.com,1999:blog-5478955167231073321.post-19483612554232139462010-06-21T20:51:00.024-04:002010-06-22T09:05:32.769-04:00Arthritis Today<div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi4uldz30YZsGz5gbO13tsSdl0zUvvGyXwkLPGC0VAUb6A9kPSIICRZARW_JT61Q1lr0AKfgm3f-UXzhhAmLxc-aHbuZJRARf-4OL-BbAcY9FHjPHVU0jgqpu5Gemkq7rgAlxg4b9Pq_4c/s1600/IMG.2.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi4uldz30YZsGz5gbO13tsSdl0zUvvGyXwkLPGC0VAUb6A9kPSIICRZARW_JT61Q1lr0AKfgm3f-UXzhhAmLxc-aHbuZJRARf-4OL-BbAcY9FHjPHVU0jgqpu5Gemkq7rgAlxg4b9Pq_4c/s640/IMG.2.jpg" width="470" /></a></div><br />
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<span style="font-size: x-small;">(click on the photo to read the article)</span><br />
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A big thank you to <a href="http://www.arthritistoday.org/magazine-issues/july-august-2010/index.php"><i>Arthritis Today</i></a> magazine for profiling me and my portrait project in the July/August issue! I am absolutely thrilled. Welcome to all of you who are finding me through this article. I am always on the look out for new subjects to photograph, so please e-mail me at jodimckeephotography@gmail.com if you are interested in participating!</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><br />
</div><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Also, thanks to Kat and Michelle for posing for portraits last winter and waiting until now to see them online. I will be posting their profiles over the coming weeks.</span> <span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Thank you all so much for your support. It means the world to me.</span><br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-DU6YKhB6YhrW2G76h4_wT5830kElTBh6_4HjOJk2q_uNsU7zcQN30pNhdKentMxpdRE5suDLN5o0fzWwgPFvzzGXND0D-oGmH1V6uXEAxlxS_OL8Tjiefi5y4Es-8SObVPYOhBOhgEQ/s1600/IMG_0001.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-DU6YKhB6YhrW2G76h4_wT5830kElTBh6_4HjOJk2q_uNsU7zcQN30pNhdKentMxpdRE5suDLN5o0fzWwgPFvzzGXND0D-oGmH1V6uXEAxlxS_OL8Tjiefi5y4Es-8SObVPYOhBOhgEQ/s320/IMG_0001.jpg" width="246" /></a></div>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com11tag:blogger.com,1999:blog-5478955167231073321.post-54200842164386590642010-06-14T15:18:00.000-04:002010-06-14T15:18:16.103-04:00Leslie<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjEOtv3C7ouOVIP6o2PtC2OWWswTctcwBcy85YY_19vnxUFhOEI6deaEZPCadYjDXnMroEbqS5iJZAaGDMH913v1_0VMAvV-vUSicS9orulnQZF57VCS5kmpn3ch9InasvlVZFMDZRt2gk/s1600/leslie+edit+small.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="436" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjEOtv3C7ouOVIP6o2PtC2OWWswTctcwBcy85YY_19vnxUFhOEI6deaEZPCadYjDXnMroEbqS5iJZAaGDMH913v1_0VMAvV-vUSicS9orulnQZF57VCS5kmpn3ch9InasvlVZFMDZRt2gk/s640/leslie+edit+small.jpg" width="640" /></a></div><br />
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<a href="http://gettingclosertomyself.blogspot.com/"><span style="font-size: small;"><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Leslie</span></span></a><br />
<div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="font-size: small;"><span>Ann Arbor, Michigan</span></span></div><span style="font-size: small;"><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Diagnosed with <a href="http://www.mayoclinic.com/health/lupus/DS00115">Lupus</a> and <a href="http://www.mayoclinic.com/health/rheumatoid-arthritis/DS00020">Rheumatoid Arthritis</a> at age 22</span></span><br />
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<span style="font-size: small;"><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">******* </span></span><br />
<div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="font-size: small;"><span><b>How has your condition affected you?</b></span><span></span></span><span style="font-size: small;"><span> My illnesses have completely changed my life. I went from being a carefree 22 year old, relishing the promise of graduate school, to having my world completely fall apart around me. I felt like a spectator in my own life. But as time has gone on, things have gotten a bit easier. <span>Mainly, I have a lot of pain and fatigue, although lupus has a broad constellation of symptoms; nausea, dizziness, headaches - basically it makes me feel like I've been hit by a truck and am plastered against a wall. Having these illnesses has made me have to re-evaluate my priorities. It has made me question a lot of things about the world, but it has also forced me to learn about myself, just like the title of my blog suggests, illness has brought me closer to myself. </span></span></span></div><div class="im" style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> <div><span style="font-size: small;"><span></span> </span></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="font-size: small;"><span><b>What would you like for other people to know about your condition?</b> Just because I don't look sick doesn't mean I'm healthy or feel good. I think that's a huge misconception. </span></span></div></div><div class="im" style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> <div><span style="font-size: small;"><span></span><br clear="all" /><span><b>What would you like to tell someone who was recently diagnosed with </b><b>your condition? </b></span></span><span style="font-size: small;"><span style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;"><span style="font-size: small;"><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">I would say that even if they can't see it now, there is hope. I never thought I would get to a point where my life wouldn't be totally preoccupied by illness. But learning to manage and know your limits are key. Learn to say no. Ask for help. Understand that you are your best advocate when navigating the medical establishment. </span></span> </span></span></div><div><span style="font-size: small;"><span style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;"><br />
</span></span></div><div><span style="font-size: small;"><span style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;">*******</span></span></div><div><span style="font-size: small;"><span style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;"><span style="font-size: small;"><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Please take a moment to check out Leslie's great blog, <a href="http://gettingclosertomyself.blogspot.com/">Getting Closer to Myself</a>.</span></span></span></span></div><div><span style="font-size: small;"><span style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;"><span style="font-size: small;"><b style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Thank you Leslie!</b></span></span></span></div></div>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com2tag:blogger.com,1999:blog-5478955167231073321.post-29907831088693138792010-06-03T15:25:00.005-04:002010-06-15T11:39:37.497-04:00Maya<div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9n1-OEFE6gk5KnMy8euRzys7q63BVuGUAzfhjHMHMbJRQz_EysdmhRVdFlusvbokJs1TXcKsoY6H5_wPCgsn4sMfJepKwk7vE87cF0oC64x0BdldwosW9wpRyotLY8UTAFczPS5iiqLY/s1600/maya+small+edit.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="442" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9n1-OEFE6gk5KnMy8euRzys7q63BVuGUAzfhjHMHMbJRQz_EysdmhRVdFlusvbokJs1TXcKsoY6H5_wPCgsn4sMfJepKwk7vE87cF0oC64x0BdldwosW9wpRyotLY8UTAFczPS5iiqLY/s640/maya+small+edit.jpg" width="640" /></a></div><br />
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<div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><a font-size:="" href="http://lovingwithchronicillness.blogspot.com/" small;="" target="_blank><span style="> </a></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="font-size: small;"><a href="http://lovingwithchronicillness.blogspot.com/">Maya</a> </span><br />
<span style="font-size: small;">New York City</span></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="font-size: small;">Diagnosed with <a href="http://www.spondylitis.org/about/undif.aspx">Undifferentiated Spondyloarthropathy</a> at age 15</span></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="font-size: small;">*******</span></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="font-size: small;"><b>How has your condition affected you?</b></span><span style="font-size: small;"> It wasn't easy to live in pain through my childhood and my most formative years - it's not easy today and it wont be easy tomorrow. I've gone through my share of denial, grief, anger and fear and I'll go through it again. But the difference now is that I've learned to see my illness as just part of me - the person I'm proud to be. Being in chronic pain has made me search for the the small joys: the people, animals, places and things that I can still enjoy every day. It begs me to accept the ups and downs and to roll with the punches. It has also taught me to accept myself on a different level and, instead of dwelling on what I can't do now, take pride in the things I've overcome. I've called my disease a "built-in friend filter" because the ones who are left standing beside me are the ones who are meant to be there. I've also come to know myself and others in a much more intimate way. Looking forward, Spondylitis has also helped me recognize my calling for social work and helping children, young adults, siblings, parents, and families as a whole cope with the challenges posed by chronic illness and disability. I don't know that I would have found this purpose without my disease.</span></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="font-size: small;"></span></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="font-size: small;"><b>What would you like for other people to know about your condition? </b></span><span style="font-size: small;">Living in pain every day is something that's hard to describe, but thank you for asking me to try. Sometimes I want to talk about it and sometimes I don't, but usually a simple and sincere, "How are you feeling today?" goes a long way. In fact, if you're wondering anything about my illness, it's okay to ask (it would show me you cared to know). It means so much when you come to understand the unpredictability of this disease, realizing that things can change from hour to hour and that I can't always keep plans. It means even more if you're content in skipping these plans and just being with me. It's hard to see you sad for me, so try not to feel that way. Instead, focus on the things I can still do. But really, it's the littlest things - the every day things - that can mean the most... carrying a heavy bag when you see pain in my face, walking slower than normal, or even opening that jar that I swear I loosened for you ;) </span></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div><span style="font-size: small;"><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>What would you like to tell someone who was recently diagnosed with </b><b>your condition? </b></span></span><span style="font-size: small;"><span style="font-size: small;"><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Congratulations on having a name and reason for your pain and for taking a crucial step toward feeling better. Now make sure you have a doctor who will work aggressively to slow or stop the progression of the disease. After all, we're lucky to live in a time with medications that do just that. Don't just take his or her word for things. Actively search for alternative therapies, work </span><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; font-weight: bold;">with</span><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> this doctor, but still be your strongest advocate. When the diagnosis settles in more, you have a choice to make: do you make this disease an enemy or just another part of your life? Try not to fear accepting "letting the disease win" - you have enough to fight without fighting yourself. Allow yourself to feel proud of the simple fact that you're living in the face of pain. Really listen to yourself and it's likely you'll become self-aware in ways that others could only imagine. You'll also develop great empathy, recognizing pain in peoples' faces. This connects you to humanity and your fellow sufferers on a deeper level, so talk to them. You don't have to do this alone. Spondylitis will make you appreciate the "good days" that much more. It will force you to slow down and appreciate the people who will slow down with you. Most of all, try not to beat yourself up because ups and downs are the name of the game. Illness doesn't have to be the end of anything, so focus instead on all you can still do and get ready to surprise yourself with your own strength. </span></span></span><br />
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<span style="font-size: x-small;"><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">(We met a super cute puppy during our shoot. Hi Randolph!)</span></span></div><div><span style="font-size: small;"><span style="font-size: small;"><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> </span></span></span></div><div></div><div><br />
<span style="font-size: small;"><span style="font-size: small;"><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Please take a moment and check out Maya's wonderful blog, <a href="http://lovingwithchronicillness.blogspot.com/">Loving with Chronic Illness</a>.</span></span></span></div><div><span style="font-size: small;"><span style="font-size: small;"><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>Thank you so much Maya!!</b></span></span></span></div></div>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com3tag:blogger.com,1999:blog-5478955167231073321.post-75217657299811193732010-05-12T08:58:00.002-04:002010-07-14T15:55:39.672-04:00Katy<div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgt0PFfgGwrxQq1bSGv5meg2OdV2NpnkNrxiL7j5JiHfhx5wPcSArRl5lFJ7QTqGOjNpZ76mkYGWEngJSf1w9Q7drrsbtLeV8zY0RyQeHrBmr9bH7aUMVo48vkSZQ-QLFIiSJTpHZ9gC7Q/s1600/katy+edit+small.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="440" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgt0PFfgGwrxQq1bSGv5meg2OdV2NpnkNrxiL7j5JiHfhx5wPcSArRl5lFJ7QTqGOjNpZ76mkYGWEngJSf1w9Q7drrsbtLeV8zY0RyQeHrBmr9bH7aUMVo48vkSZQ-QLFIiSJTpHZ9gC7Q/s640/katy+edit+small.jpg" width="640" /></a></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Katy<br />
Noblesville, IN</div><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Diagnosed with <a href="http://www.mayoclinic.com/health/rheumatoid-arthritis/DS00020">Rheumatoid Arthritis</a> at age 30.</span><br />
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<b><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">How has your condition affected you?</span></b><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> My condition has affected me in several ways. The worst part of all of this for me was waiting for a diagnosis. I feared that I had a deadly disease that would rob me of my opportunity to live a long and full life with the man that I love and our beautiful children. I have resolved to never take my time with them for granted. I have also become more aware of toxins in our homes. I have tried to shift towards buying organic food and green cleaning products, though the strain on our budget is difficult. I am truly less energetic than I used to be, which is far more frustrating than the constant pain in my hands and feet. I feel that despite great ambitions for my life, I am somewhat limited by the constant and overwhelming fatigue. This makes me sad or angry more often than I would like to admit.</span><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>What would you like for other people to know about Rheumatoid Arthritis? </b>People should know that having Rheumatoid Arthritis is more than pain in your joints. It is experiencing all of the feelings that I described and more. It is nearly invisible to an outsider, but the pain and fatigue are real and intense.</span><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>What would you like to tell someone who was recently diagnosed with </b></span><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>Rheumatoid Arthritis? </b></span><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">If someone was recently diagnosed with an autoimmune disease, I would tell them to always look for the silver lining in any bad situation. Although it is hard to believe, having RA has had a positive effect on my life in some ways. My husband and I have grown closer after my diagnosis. I feel overwhelming love and gratitude when he steps up to the plate, when I am too tired to handle something. I cherish every moment with him and our children. I have become a better mother by being very aware of my children's nutrition, with the hope of preventing them from developing an autoimmune disease. I have been a better friend by providing support to my other friends with similar conditions. When I am sad, I try to focus on these things and spoil myself with my favorite coffee, of course!</span><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>Thank you so much Katy!</b> </span>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com6tag:blogger.com,1999:blog-5478955167231073321.post-80616028634800234322010-05-03T21:26:00.002-04:002010-05-03T21:28:14.681-04:00Heather<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg78QsKrOdLY3XfDZhw27NhLZ_7V-GoMv53kjSZzDF6xtWwXhQkXOgcwiUUQM70oElgIO87xVp7dCkGieglLunDT8WMONa_XG83ToYx-LAImLXPReNePeQ1mHARyjq10Q6TIO4aAOJVm0I/s1600/heather+edit.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="440" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg78QsKrOdLY3XfDZhw27NhLZ_7V-GoMv53kjSZzDF6xtWwXhQkXOgcwiUUQM70oElgIO87xVp7dCkGieglLunDT8WMONa_XG83ToYx-LAImLXPReNePeQ1mHARyjq10Q6TIO4aAOJVm0I/s640/heather+edit.jpg" width="640" /></a></div><br />
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<div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Heather</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Louisville, KY</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Diagnosed with <a href="http://www.mayoclinic.com/health/fibromyalgia/ds00079" target="_blank">Fibromyalgia</a> at age 14. Also suffers from <a href="http://www-epsteinbarrvirus.com/blog/natural-treatments/epstein-barr-virus-infection-and-auto-immune-disease/" target="_blank">Epstein-Barr</a> and <a href="http://www.mayoclinic.com/health/chronic-fatigue-syndrome/ds00395" target="_blank">Chronic Fatigue Syndrome</a>.</div></div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">*******</div><b><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">How has your condition affected you?</span></b><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> </span><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">My condition has played a huge role in my life through the years. My lack of energy and increased pain has led me to isolate some and not participate in activities that I enjoy. In school, my pain made sleep and participation in sports challenging. As an adult I find completion of the basic of tasks (like laundry) almost impossible at times. I have missed some work, canceled on friends and have become a needy wife during flare-ups. Not to mention the emotions attached - mostly depression. Some days I feel like an observer of my own life - feeling so detached from all around me (due to pain, brain fog, fatigue, etc.) However, now I am learning to be more mindful of my body and to pay more attention to how I am feeling in a positive way - using my body as a barometer of sorts to see what positive behaviors need to be implemented.</span><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>What would you like for other people to know about Fibromyalgia?</b> I want others to know that it is a REAL condition and that just because you can't visibly see problems with the body doesn't mean that everything inside is working spot-on! </span><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>What would you like to tell someone who was recently diagnosed with Fibromyalgia?</b> Learn from your body - take this opportunity to truly connect to your physical and emotional self. Be an active participant in your life - learn what's important to do (like relaxation exercises, stretching, sleep, vitamins, being w/ friends etc.) and what you can live without - Don't watch your life pass you by!</span><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>Thank you so much Heather! xo</b> </span>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com4tag:blogger.com,1999:blog-5478955167231073321.post-70683783918014904462010-02-07T11:54:00.001-05:002010-02-07T11:54:42.744-05:00Brief Hiatus<div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Hello interwebs. i just wanted to let you know that I am still here. Due to the holidays and the extremely cold weather of late, coupled with an extended bout of bronchitis, my portrait project is kind of on hold for the moment. I have a couple of pending portraits and some other exciting things lined up. Stay tuned!</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><br />
And please e-mail me if you are interested in participating in my project.</div><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">jodimckeephotography@gmail.com</span>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com0tag:blogger.com,1999:blog-5478955167231073321.post-10715761994038233212009-12-03T14:41:00.006-05:002009-12-04T09:11:21.101-05:00Jacqueline<div class="separator" style="clear: both; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; text-align: left;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjamRvV8DRBRwQpyEDNNPkbRUL9wfn9370DdS-RkkOMmeWIGL1cRhXt-pfJE5pcSRq37y-g54-xnpjgGj_jBIDmetAAvhL1zlnsp_MDSL0oVzAnlzUX1VfXVUhwrGbOSc05c-w_3rYUY7U/s1600-h/jackie.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjamRvV8DRBRwQpyEDNNPkbRUL9wfn9370DdS-RkkOMmeWIGL1cRhXt-pfJE5pcSRq37y-g54-xnpjgGj_jBIDmetAAvhL1zlnsp_MDSL0oVzAnlzUX1VfXVUhwrGbOSc05c-w_3rYUY7U/s640/jackie.jpg" /></a><br />
</div><div class="separator" style="clear: both; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; text-align: left;">Jacqueline<br />
</div><div class="separator" style="clear: both; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; text-align: left;">Long Island, NY<br />
</div><div class="separator" style="clear: both; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; text-align: left;">Diagnosed with <a href="http://www.mayoclinic.com/health/rheumatoid-arthritis/DS00020" target="_blank">Rheumatoid Arthritis</a> at age 29<br />
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<div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>How has your condition affected you?</b> After giving birth to my son 3 years ago, my feet were feeling slightly stiff and uncomfortable. The stiff feeling never went away and, in fact, slowly got worse. I wouldn't say I ignored it, but I almost got used to the discomfort, thinking I was just having normal body aches.<br />
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</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Last year, it started to become significantly worse and I went to my Primary Care Physician (PCP), who told me that it was simply some tendonitis I was experiencing after a childhood of being active. That sounded okay and I went with it. I had a neck injury from a past car accident, and attributed a lot of my pain to that as well. In the past year, my symptoms progressed and spread to my hands and knees. My feet got so stiff that I couldn't walk in the morning without cracking and popping them at the joints.<br />
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</div><div class="separator" style="clear: both; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; text-align: left;">I finally went past my PCP and went straight to a Rheumatologist. I was immediately diagnosed with Rheumatoid Arthritis. I was more emotional about it than I excpected. I guess hearing that you have a life-long disease is hard to swallow no matter what it is. I was told I needed to begin Methotrexate right away. The Rheumatologist ran down a huge list of scary side effects. But it is necessary and effective in stopping the progression of RA. I haven't been able to begin the treatment yet though, because a few months ago I was given a live virus vaccine. In the meantime, they have me on Prednisone. It is helping a little, but making me gain weight quickly. In fact, I was worried about my picture for this project because of the puffiness of my face!<br />
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</div><div class="separator" style="clear: both; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; text-align: left;">I am in a great deal of pain, and can now only sleep for about an hour at a time before the stiffness and pain wakes me up. I am a mother and work full time and it honestly makes a lot of my days a struggle to get through. I am hopeful that the treatment will turn this all around for me. I am lucky to have the love of my family to help me through each day.<br />
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</div><div class="separator" style="clear: both; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; text-align: left;"><b>What would you like for other people to know about Rheumatoid Arthritis?</b> I think the name of the disease is misleading for most. Although our joints are affected and become arthritic, the disease itself is an autoimmune disorder. It is not a joint disorder like most believe; it is our immune system losing the ability to identify the difference between the good and bad things in our bodies, so it begins to attack everything. I told my family to all please read up on this disease, because I feel like they must think I am nuts when I tell them I am having a bad day and feel miserable, when realistically, I look just fine. I think it has been a lesson to me to not assume that you understand another person's struggles just by looking at them. There could be a quiet struggle underneath that they are fighting every day, which is exactly the situation for most people with an autoimmune disorder.<br />
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</div><div class="separator" style="clear: both; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; text-align: left;"><b>What would you want to tell someone who was recently diagnosed with RA?</b> Well, I am one of those recently diagnosed people, and at this point, still live with severe pain and sleepless nights. Turning to others who have RA has really helped me understand that the emotions I am feeling are normal, and that there is definitely a light at the end of the tunnel. So many live with this every day, and so many continue to live normal, comfortable lives. I look forward to getting to that point. I continue to research every day so that I can make sure I am doing everything I can to help myself and others who have RA.<br />
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</div><div class="separator" style="clear: both; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; text-align: left;"><b>Thanks so much Jackie!</b> <br />
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</div>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com18tag:blogger.com,1999:blog-5478955167231073321.post-27665450364327674972009-11-23T15:03:00.004-05:002009-12-03T14:51:13.696-05:00Jennifer<div class="separator" style="clear: both; text-align: left;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiERPVk9aOd7uDXPAH6YrDn2REucxhfBUBB8Zx6m6_UEiA5ZqgEgfoTAzjUDX8nWfrCRY78T-YuZkjgJ5X0HwJs0Gjq2a5EF8yLL24LpMu7sr5IgPBi2jDko-Twu8ZvXDgBTnGDSdDvb34/s1600/jennifer.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiERPVk9aOd7uDXPAH6YrDn2REucxhfBUBB8Zx6m6_UEiA5ZqgEgfoTAzjUDX8nWfrCRY78T-YuZkjgJ5X0HwJs0Gjq2a5EF8yLL24LpMu7sr5IgPBi2jDko-Twu8ZvXDgBTnGDSdDvb34/s640/jennifer.jpg" /></a> <br />
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<div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><a href="http://www.jenniferkonig.com/" target="_blank">Jennifer</a><br />
</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Cold Spring, NY<br />
Diagnosed with <a href="http://www.mayoclinic.com/health/fibromyalgia/DS00079" target="_blank">Fibromyalgia</a> at age 36<br />
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</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>How has your condition impacted you?</b> I discovered I had fibromyalgia when I went to see a rheumatologist for a persistent pain in my hip. My GP thought it might be rheumatoid arthritis, and she wanted a second opinion from a specialist. <br />
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Turns out the hip pain was a soon-gone case of bursitis, but while on the examining table, the rheumatologist touched pressure points in certain places. The pain was so intense, I burst into tears and begged him to stop. Apparently there are close to 20 different pressure points to test for fibromyalgia; we stopped after 7 or 8, because it was so obviously positive. Since the diagnosis, I've had to cut way back on exercising -- repetitive motion and high-impact activities only aggravate it. I've tried swimming, but because the FM also makes me extremely low energy, combined with chronic depression, sometimes I quite literally can't get out of bed. Yoga is a good compromise; it gets my muscles moving, and is calming as well.<br />
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</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>What would you like other people to know about Fibromyalgia?</b> Chronic, invisible illnesses need patience and understanding, from ourselves as well as our families and friends. It's the same with depression. It's not something you can snap out of; there's no Magic Pill that will make FM, RA, or any other autoimmune disease vanish in 10 days. There are treatments, yes, but they have side effects, and they don't always work. And often with fatigue, people think you're just avoiding things, checking out -- but the wave of tiredness that sweeps over the body is just that, a wave. It can bring a body to its knees. Add to that, the pain. Tap me on my arm, and it might hurt for a good five minutes. I am not a wuss. It's not me being weak. It just is.<br />
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</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>What would you want to tell someone who is recently diagnosed with Fibromyalgia?</b> There are some people who, once they are diagnosed with a chronic condition, embrace it as a defining feature, and it becomes who they are. I would advise against this. You're still alive. That said, definitely treat it as best you can, and get the help you need, be it changing your diet, trying a new medicine, or seeking psychological counseling to help cope with the fears and stresses of being sick all the time. I waited years before admitting I needed to face it, though I still don't talk about it much, and I try not to become preoccupied with it. But I am more aware of it, and more respectful of how serious it is. Just listen to your body. If you need to lie down, lie down, and don't feel guilty about it. If someone is giving you a hard time, flood them with links and information; this is very real. And frankly, it is what it is. And it can, and will, be OK.<br />
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</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>Thank you so much <a href="http://www.flickr.com/photos/jkonig/" target="_blank">Jennifer</a>!</b><br />
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<b>NOTE:</b> <i>While Fibromyalgia is not technically considered an autoimmune disease, I will include it in my project as it is definitely an "invisible illness" with a lot of symptoms that are very similar to many autoimmune diseases, including chronic pain and fatigue. -Jodi</i> <br />
</div>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com7tag:blogger.com,1999:blog-5478955167231073321.post-62260823653323606472009-11-20T14:46:00.009-05:002009-12-03T14:51:41.882-05:00Kelly<div class="separator" style="clear: both; text-align: left;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgPMYfCwCl3TR7G-yngGZ5rUMU_67mqZE_XnnDuexVMy14Xih7VdyjLQnQyOgi4OzAEtfFbzxFWkkXWj9VH9ZQuzcdrqqqSx2-YXaGCQnWXo9q7hiEfdmXq0e3eM3GYJe4FXGP51-PXj7M/s1600/kelly.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgPMYfCwCl3TR7G-yngGZ5rUMU_67mqZE_XnnDuexVMy14Xih7VdyjLQnQyOgi4OzAEtfFbzxFWkkXWj9VH9ZQuzcdrqqqSx2-YXaGCQnWXo9q7hiEfdmXq0e3eM3GYJe4FXGP51-PXj7M/s640/kelly.jpg" /></a> <span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Kelly</span><br />
</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Drexel Hill, PA<br />
</div><div style="color: purple; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><a href="http://www.mayoclinic.com/health/graves-disease/DS00181" target="_blank">Grave’s Disease</a>, <a href="http://www.mayoclinic.com/health/sjogrens-syndrome/DS00147" target="_blank">Sjogren’s Syndrome</a>, <a href="http://www.mayoclinic.com/health/rheumatoid-arthritis/DS00020" target="_blank">Rheumatoid Arthritis</a>, <a href="http://www.mayoclinic.com/health/fibromyalgia/DS00079" target="_blank">Fibromyalgia</a>, <span style="color: black;">and</span> <a href="http://www.aocd.org/skin/dermatologic_diseases/dsap.html" target="_blank">DSAP (Disseminated Superficial Actinic Porokeratosis)</a><br />
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</div><div class="MsoNormal" style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="font-size: small;"><b>How has your condition impacted you?</b> I was diagnosed with Grave’s disease when I was 30. At the time my endocrinologist told me that having one autoimmune disease opens the door for other autoimmune diseases to develop. I didn’t take that information too seriously at the time. Ten years later I’m managing 5 diseases. </span><br />
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<span style="font-size: small;">Rheumatoid arthritis is usually my main health concern, but all of the diseases can kick my butt from time to time. It’s not always easy to manage multiple prescriptions and doctors appointments, along with daily life especially when joint pain and fatigue make simple things like walking and driving difficult. I had to learn how to rest and be kind to myself. The hardest thing has been realizing that I need to ask for help now and again. I still struggle with that the most.</span><br />
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</div><div class="MsoNormal" style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="font-size: small;">When I was diagnosed with Rheumatoid Arthritis in my late 30’s I thought it was the end of the world. Now I know it’s just a different way of living in the world. I have a good life even though it isn’t the life I envisioned and it did take me a while to accept that.</span><br />
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<span style="font-size: small;"><b>What would you want people to know about your condition?</b> </span><span style="color: #444444; font-size: small;">Whenever someone hears that I have autoimmune diseases they always say, “But you don’t look sick” or “you’re too young to have arthritis”. I want people to know that having an autoimmune arthritis is different from osteoarthritis. It can affect people at any age, including childhood. <a href="http://www.arthritis.org/disease-center.php?disease_id=31">According to the Arthritis Foundation</a>, “Rheumatoid Arthritis </span><span style="color: #333333; font-size: small;"> affects 1.3 million Americans. Currently, the cause of RA is unknown, although there are several theories. And while there is no cure, it is easier than ever to control RA through the use of new drugs, exercise, joint protection techniques and self-management techniques. While there is no good time to have rheumatoid arthritis, advancements in research and drug development mean that more people with RA are living happier, healthier and more fulfilling lives.” </span><br />
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<span style="color: #333333; font-size: small;">There is a lot of information out there...some good and some bad. I’ve joined the Arthritis Foundation and <a href="http://www.bucklemeupmovement.com/">Buckle Me Up! Movement</a> to help spread awareness of autoimmune arthritis disorders like RA & Sjogren’s Syndrome.</span><span style="color: #333333; font-size: small;"> </span><br />
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<span style="font-size: small;"><b>What would you want to tell someone who is newly diagnosed with your condition?</b> </span><span style="color: #444444; font-size: small;">It is important to find a doctor that you feel comfortable with and can have open and honest communication. Don’t be afraid to ask questions about recommended treatments and holistic alternatives. I also recommend seeking out support groups or counseling because managing a non-curable disease can be overwhelming at times. Know that you are not alone and don’t be afraid to ask for help.</span><br />
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</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="color: #444444; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; font-size: small;"><b>Thank you so much Kelly!</b> </span><span style="color: #3c5264;"></span><br />
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</div>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com11tag:blogger.com,1999:blog-5478955167231073321.post-88420077254970402962009-11-19T09:35:00.003-05:002009-12-03T14:51:57.130-05:00Rob<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhxv60dsJlitr8Fnt_WKkiw99rWYTUBhi7JoFinzs9Fy8YgjqEidZLhD2gGNbe3YWnzIFPhtOKwy3APpi3X3pDIDGEhmmN5IcZdt0V_Crwc4fhlrIi53vUarp_xNZqSOVBEqQ57HifP3eA/s1600/rob.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhxv60dsJlitr8Fnt_WKkiw99rWYTUBhi7JoFinzs9Fy8YgjqEidZLhD2gGNbe3YWnzIFPhtOKwy3APpi3X3pDIDGEhmmN5IcZdt0V_Crwc4fhlrIi53vUarp_xNZqSOVBEqQ57HifP3eA/s640/rob.jpg" /></a><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Rob</span><br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Philadelphia, PA</span><br />
<div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Diagnosed in 1994 with <a href="http://www.mayoclinic.com/health/rheumatoid-arthritis/DS00020" target="_blank">Rheumatoid Arthritis</a>, <a href="http://www.clevelandclinic.org/arthritis/treat/facts/rheumatoid%20vasculitis.htm" target="_blank">Rheumatoid Vasculitis</a>, and <a href="http://www.mayoclinic.com/health/sjogrens-syndrome/DS00147"><span style="font-size: small;">Sjögren's Syndrome</span></a><br />
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</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>How has your condition impacted you?</b> I have had bilateral knee replacements, elbow replacement, wrist replacement, and finger fusion. The rheumatoid vasculitis causes inflammation of my arteries. I was the 10th person in the US to try an autologous stem cell transplant for RA. No medications have worked for me. I went onto long term disability in January 2009 - after having the disease for 15 years.<br />
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<a name='more'></a><b>What would you want people to know about your condition?</b> The body truly does adapt to what you're dealt. My joints certainly don't work the way normal joints do, but my body has figured out how to move about. Sure I've been forced to slow down, but this also gives me a chance to enjoy other things that I would have easily missed. It also improves the sense of humor - it's frustrating to try and fail 26 medications and see my body get progressively worse. So, I have to improve my sense of humor and short attention span.<br />
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<b>What would you want to tell someone who is newly diagnosed with your condition?</b> Be as aggressive with treatment as possible, regardless of the severity of your disease. RA only gets more and more non responsive, so the key is to jump all over it from the beginning. Also, find out as much info as you can about the disease and always ask questions of your doctor. Don't just accept their answer if you believe otherwise.<br />
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<b>Thanks Rob!!</b> <br />
</div>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com6tag:blogger.com,1999:blog-5478955167231073321.post-28986370529983740702009-11-13T15:20:00.005-05:002009-12-03T14:52:12.008-05:00Jessica<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgty5VNR5pdaruB7Aid-k08veyZcMAtywJZw4lD7LeDmZ_JRGHTK0AoIFcY9QrFzxBEvnTCxtU2pf6tKagowYwVOBVuXB_ggefxMoKlGeq1ZoPzHmqoUwfWE28ZoZG0Ut1F49Hp-XGpxdY/s1600-h/jessica.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgty5VNR5pdaruB7Aid-k08veyZcMAtywJZw4lD7LeDmZ_JRGHTK0AoIFcY9QrFzxBEvnTCxtU2pf6tKagowYwVOBVuXB_ggefxMoKlGeq1ZoPzHmqoUwfWE28ZoZG0Ut1F49Hp-XGpxdY/s640/jessica.jpg" /></a><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Jessica</span><br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Brooklyn, NY</span><br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Diagnosed with </span><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><a href="http://www.mayoclinic.com/health/polymyositis/DS00334" target="_blank">Polymyositis</a> in 2004 and <a href="http://www.mayoclinic.com/health/idiopathic-thrombocytopenic-purpura/DS00844" target="_blank">Idiopathic Thrombocytopenia Purpura</a> (ITP) in 2006</span><br />
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</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>How has your condition impacted you?</b><br />
Well, now I can look back and count myself lucky because the progression of my disease was very slow, my doctors recognized it early, and I responded well to medication. A couple of years ago was pretty difficult as not only did I have to deal with a loss of physical strength but I also had to deal with a loss of identity. I've always identified as a strong person, able to do anything on my own, and this disease has put a serious crimp on that kind of thinking. It is something I still struggle with now. In other ways, my life is better since I take much better care of myself. I eat better and really know the importance of regular exercise and sleep.<br />
<b><a name='more'></a>What would you want people to know about your condition?</b><br />
Well, there is the obvious that you can't always tell if someone is disabled. Polysyositis is a muscular inflammatory disease where your immune system attacks and breaks down your muscle tissues. They don't know what causes it or how to really treat it so they just suppress your immune system with powerful (and sometimes dangerous) drugs. Research is being done. The Myositis Association has some pretty good information (and they accept donations) at <a href="http://www.myositis.org/">www.myositis.org</a>.<br />
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What would you want to tell someone who is newly diagnosed with your condition?</b><br />
</div><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">It is very important to find a good doctor, one that you can work with and listens to you. You'll be seeing that doctor for a long time and they'll be asking you to do things you don't want to do. It's best to have someone who is willing to explain things thoroughly and who you feel hears your concerns. Also, what you eat and how much you sleep can make a HUGE difference in how you feel.</span><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>Thank you so much Jessica!! </b><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"></span>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com4tag:blogger.com,1999:blog-5478955167231073321.post-3657881375899475722009-11-10T14:14:00.013-05:002009-12-03T14:52:54.895-05:00Carrie<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9aEUJ9Ciha-EVZO_TO48G-WKWm5x-nGhXp-_fvUOTGoGgyd0BMnqNURMvIwHZ27jsYL9MegyLet_r1OWyjW8R325endWlZCb-5ZCVvRo8aFFFAxjeXzmxQqwHc0i65zrictpqQEC2X4M/s1600-h/carrie.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9aEUJ9Ciha-EVZO_TO48G-WKWm5x-nGhXp-_fvUOTGoGgyd0BMnqNURMvIwHZ27jsYL9MegyLet_r1OWyjW8R325endWlZCb-5ZCVvRo8aFFFAxjeXzmxQqwHc0i65zrictpqQEC2X4M/s640/carrie.jpg" /></a><br />
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<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Carrie</span><br />
<div style="color: black; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Brooklyn, NY<br />
</div><div style="color: black; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Diagnosed with <a href="http://www.mayoclinic.com/health/primary-sclerosing-cholangitis/DS00918" target="_blank">Primary Sclerosing Cholangitis</a> and <a href="http://www.mayoclinic.com/health/ulcerative-colitis/DS00598" target="_blank">Ulcerative Colitis</a> at age 31<br />
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</div><div style="color: black; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>How has your condition impacted you?</b> I’ve been lucky in that the symptoms have been minimal and I’ve responded well to medication. Since the outlook for both conditions is not all that great as they progress, I’ve become much more conscious of my health and daily decisions that might affect it in hopes that I might be able to slow, manage or stop progression. <br />
</div><div class="MsoNormal" style="color: black; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; margin-bottom: 12pt;"><b><a name='more'></a>What would you want people to know about your condition?</b> Good question. I’ve never thought about that. I guess for starters, just that it exists. It’s pretty rare, so no one’s ever heard of it. And that stem cell research can play an important role in treating/curing it. So, you know, I’d love it if people would support more stem cell research.<br />
</div><div class="MsoNormal" style="color: black; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; margin-bottom: 12pt;"><b>What would you want to tell someone who is newly diagnosed with your condition?</b> That most things sound scarier than they are, and this is no exception. That medicines—even a ridiculous amount of daily pills—can be tolerable. That you should make sure you like your doctor(s). That just because your friends and family will never have heard of PSC, doesn’t mean that they don’t care. That it’s manageable. That laughter always helps (yours or someone else’s). That once the news sinks in and you readjust, there will be days (weeks even) where you don’t think about it even once.<br />
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</div><div style="color: black; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><b>Thanks so much for sharing your thoughts Carrie!</b><br />
</div>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com4tag:blogger.com,1999:blog-5478955167231073321.post-47526311417228597622009-10-26T14:37:00.002-04:002009-10-29T21:10:01.743-04:00Dianna<div class="separator" style="clear: both; text-align: center;"><br />
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Dianna<br />
</div><div style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;">New York City <br />
</div><div style="font-family: 'Helvetica Neue',Arial,Helvetica,sans-serif;"><a href="http://www.mayoclinic.com/health/rheumatoid-arthritis/DS00020" target="_blank">Rheumatoid Arthritis</a><br />
</div><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Dianna says, "At age 52, I was told I was too old to get Rheumatoid Arthritis. Just got lucky I guess."</span><br />
</span>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com2tag:blogger.com,1999:blog-5478955167231073321.post-77261124453064910362009-09-28T14:34:00.000-04:002009-10-28T15:39:26.262-04:00Daniela<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-z-pwR_UUiW_yEgtQhq6MAAj3xj727j9QcTelFhw8pxAHPDr_sR7Mj1t3mw9NcutzDSW2Ax2WUU7cpQD4UGTKD_EBjjKXdW9QaNGMoEjzgaCin7bDwS9fca1L1LIUH943U5Nq-ArZXFA/s1600-h/dani.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-z-pwR_UUiW_yEgtQhq6MAAj3xj727j9QcTelFhw8pxAHPDr_sR7Mj1t3mw9NcutzDSW2Ax2WUU7cpQD4UGTKD_EBjjKXdW9QaNGMoEjzgaCin7bDwS9fca1L1LIUH943U5Nq-ArZXFA/s640/dani.jpg" /></a><br />
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Daniela<br />
</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Indianola, WA<br />
</div><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><a href="http://www.mayoclinic.com/health/hashimotos-disease/DS00567" target="_blank">Hashimoto's Disease</a>, <a href="http://www.mayoclinic.com/health/vitiligo/DS00586" target="_blank">Vitiligo</a> and <a href="http://www.mayoclinic.com/health/fibromyalgia/DS00079" target="_blank">Fibromyalgia</a></span>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com4tag:blogger.com,1999:blog-5478955167231073321.post-62015625339911262332009-09-28T14:30:00.002-04:002009-12-01T11:10:57.004-05:00Sara<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_ewelOWYrS5QqDUX4a8fOUbtLvScQdhFkxYUixcuPwEyNbYQB-gCT30rGgflLgf3HMck_qFGGRlQBhx6DqjXqIZPRI7D8EtstGXo565FjtOf6O3YYx1qM9wY_fKkRvWr5er5Q-_w5dhY/s1600-h/sara3.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><br />
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<a href="http://singlegalsguidetora.typepad.com/" target="_blank">Sara</a><br />
</div><div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">New York City<br />
</div><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Diagnosed with <a href="http://www.mayoclinic.com/health/rheumatoid-arthritis/DS00020" target="_blank">Rheumatoid Arthritis</a> at age 29</span>Jodihttp://www.blogger.com/profile/13554544715437727730noreply@blogger.com1